Dear friends and families, in light of recent and ongoing events, we will be suspending all gatherings and social group activities. We will remain vigilant in our efforts to protect our members and community, but will continue to serve the Down syndrome community by providing resources and help as we are needed. We are still available by phone and email if there is anyone in need of our services. We hope that all of you will remain safe and healthy. Thank you for your patience and we look forward to seeing you all again soon.

Brian C. Callahan, President FCDSN







FCDSN would like to extend a special Thank You to all of our 2019 Buddy Walk Sponsors!


      Dr Stephen Sulkes







About Us

We are a network of families, professionals, self-advocates, and friends who all share in the joys and challenges of a loved one with Down syndrome. We know firsthand what you are experiencing, and we are here for you if you have any questions. There is no need to walk your path alone… sometimes the road we travel is bumpy, but you can enjoy the ride!

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Social Groups & Events

The FCDSN is proud to be able to sponsor four social groups for our members – Birth to 5 years of age, Preteens (6-12 yrs), Teens (13-20 yrs), and Adults (21 yrs+). Events typically occur on a monthly basis. For more information about our social groups or to see what’s going on, check out our Events page.

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New or Expecting Parents

If you’re a new or expecting parent of a child with Down syndrome and are looking for information or support, you’ve come to the right place. If you’d like someone to contact you, please take a moment and complete a quick contact form by following the link below.

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Get FCDSN Apparel

Check out our apparel website and support the Flower City Down Syndrome Network with a new look!

View FCDSN Apparel

Hi, I’m Matthew.

I love playing all sports but mostly basketball, hockey and baseball. I have played ice hockey with the Rochester Ice Cats and have made many new friends. I love anything WWE and go to see them live with my uncle Mike each year. I have a very big collection of WWE wrestlers. I love music and love to dance, especially at weddings. I am in band at my school and I play the drums too. I love going to the beach in the summer to listen to live music and dance. I love swimming in my pool and being outdoors, especially camping with my mom and sister!

Hi, I'm Josie.

I was born in New Hampshire, just north of Boston, and relocated with my family to be near her grandparents and cousins here in Rochester. I live with my parents Kristina and Kevin, and her three sisters, She is excited to be going to Kindergarten next year with her older sisters who she looks up to! I love to chat and interact using my AAC device and sign language! I love reading, music, and going to gymnastics and horseback riding! My current favorite movie is Frozen, and I a fan of Sesame Street’s Elmo! I have a great sense of humor and enjoy playing with my sisters and friends.

Hi, my name is Seamus.

I enjoy music, reading, playing outside, taking walks with my parents and swinging. I also like going to Maine and walking on the rocks at the beach. I love to laugh and meet new people, and I am good at shaking hands. At school I love when the dogs visit so I can walk them and pet them.