We are a network of families, professionals, self-advocates, and friends who all share in the joys and challenges of a loved one with Down syndrome and we are always looking for new members to join our community. There are many benefits that come with membership in the Flower City Down Syndrome Network, including:

  • Parent Support workshops & meetings
  • Age-appropriate Social Groups
  • Member Appreciation events
  • Cash Reimbursement programs

I hope to have as many friends as all the stars in the sky. I think that I am getting close to my wish.

-Annie Forts

What is Down Syndrome

Down syndrome , or trisomy 21, is a genetic condition caused by the presence of all or part of an extra 21st chromosome. The incidence of Down syndrome is estimated at 1 per 733 births, making it the most commonly occurring chromosomal condition. There are more than 400,000 people living with Down syndrome in the United States.

New or Expecting Parents

If you’re a new or expecting parent of a child with Down syndrome and are looking for information or support, you’ve come to the right place. If you’d like someone to contact you, lease take a moment and complete a quick contact form by following the link above.

Resources for Individuals & Families

Are you an adult with Down syndrome or does someone in your family have Down syndrome? If so, our Individuals & Families resource page has information that you might find useful. Follow the link to find out what we’ve got.


As parents of children with Down syndrome, we want to make sure that our doctors, educators, and therapists have the most current and up-to-date information.