Programs Offered

The Flower City Down Syndrome Network offers several groups and programs to support our member families. We provide Birth Packets free of charge for parents of newborns, or prenatally diagnosed infants, with Down syndrome. We also provide these packets to local area physicians and hospitals, including the Strong Genetics Counseling Clinic.

Our Parent Support Meetings and Social Groups offer parents and caregivers the opportunity to learn more about Down syndrome and how best to support their child (or children) by talking with medical experts and with other parents (check out our Events page for dates and times).

Well wishes are available upon request, as well as Special Services such as interpreters or gluten-free needs. Special Needs Adoption information is available for those families considering adoption of a child with Down syndrome. Several FCDSN member families are available to offer support, as they have adopted their own children with Down syndrome.

First Call

Flower City Down Syndrome Network is proud to bring the Parent’s First Call program to Rochester! For new and expectant parents of babies with Down syndrome, any opportunity to connect with other parents who have had the same experience can be invaluable.

Founded by the Massachusetts Down Syndrome Congress this program has been adopted by several states! Parents First Call Program is a volunteer group of trained parent mentors available 24/7 to listen, share, answer questions, and provide valuable information. Mentors also help to connect families to resources that are available in our area as we know this can be a scary and overwhelming experience for many new families! Please review our brochure below as well as the link to the MDSC website for additional information on First Call!

FCDSN First Call Brochure

FCDSN First Call Contact Information:

585-364-2130 or email our Family Support Coordinator.



Visit MDSC for additional information

Birth Packet Request

These informational packets are put together by the FCDSN for new parents of children with Down syndrome. If you or someone you know would like to receive one of our free Birth Packets, please click the link below and fill out the form.

Contact Us

Adoption Information

Are you considering Special Needs or International Adoption? If you have ever thought adoption might be for you, the link below will take you to Reece’s Rainbows, a group whose mission is to rescue orphans with Down syndrome through the gift of adoption, to raise awareness for all of the children who are waiting in 25 countries around the world, and to raise funds as adoption grants that help adoptive families afford the high cost of adopting these beautiful children.

Visit Reece's Rainbows